So today is +23 for Tom (23 days post transplant). He was let out of the hospital on Wednesday which was day 19 and that's apparently an incredibly fast turn around. He did however come out with strep throat, a backwards internal clock, random projectile vomiting, and the expected extreme fatigue. All of this however is so much nicer to deal with in the comfort of one's own home. While no one enjoys vomiting, it's nice to be able to curl up on your couch under a nice soft (rather than cardboard textured and thin) blanket.
Since home, he has made a good effort at eating. He is still taking a lot of naps. He has been due at the infusion center daily to have labs drawn and monitored... at 8am. Dear Lord, how much I am looking forward to tomorrow's appointment being at 10am instead. We've had a few late nights and obviously some early mornings as it's a bit of an effort to get up and ready and meds sorted all to leave by 7:30 (even though we are theoretically only 10 minutes away... apparently there's a bit of a traffic issue at this time in the morning, apart from weekends). My favorite bit (she says rather sarcastically) is that the clinic doesn't actually open until 8am and so when we get there, we're sat out in the hall waiting for them to open the doors. It gets even better, for when they do actually open the doors, even though you're one of a total of three first appointments... no one gets called back for an additional ten minutes. What's all that about? Either A. the nurses should be getting there 15 minutes earlier to prepare for the day instead of also at 8am or B. don't book any appointments until 8:15 or 8:30 as patients (and their caregivers) are a bit tired and it's a big to-do to get him going in the morning to just come and sit around just because no one is ready yet. Am I asking too much here?
I'm tired. I've been doing so well, but today I am just flat out tired. Tom has been having a hard time making the switch back over to being alive during the day, he's been up coughing all night, was vomiting a few nights ago, had incredibly dry and excruciatingly painful eyes that he needed drops put in every 20 minutes or so... but then he naps all day and I do not, so today it has caught up with me. Let's hope that tonight I get some well needed sleep and hopefully Tom does too because I may be unresponsive (haha).
Lastly, Helen (my mother in law), sadly leaves this coming week. Not only will I be sad because she's incredibly helpful and wonderful company for the days that I sit and watch Tom sleep, but she also allows for an outlet because she can stay with Tom while I go out or take Izzy out, etc. Also, Tom is going to miss her terribly. He is quite upset that his mom is leaving as to him he's only really just got to spend time with her because he felt like a vegetable (specifically a cabbage, in his words) while in the hospital... so now that he's home and she sadly must leave the following week, he's really bummed. It's a good thing her brother comes out the next week and then I have a little surprise planned for him a couple weeks after that and even better, his mom will be back in June for another month. So it will all be okay, just always sad to see her go. Can't wait to reveal the surprise, but for security measures I must not share until it has happened.
Now, for a second afternoon cup of coffee. Oh! Before I forget, check out the leukemia log for photos of the fundraiser! It was such a success and we are so incredibly touched and appreciative for the incredible level of support that we received! Seriously, so wonderful! Thank you to anyone who played any part in that! :)
