Friday, February 15, 2013

The Final Countdown

So here we are, finally with the transplant nearing!!!  There were moments where I felt we'd never get there and moments where I feared they might not find anyone, but here we are!!  Originally we were told dates that are mostly at the end of March, but yesterday we were told that Dr. Carroll is pushing to move the date up for fear of Tom's fragile remission status. So, we've begun all of the testing/screening he must complete and we could possibly be going in the first week of March!  It all depends on the donor, but it's mind boggling how quickly this ball began rolling once it did.

I keep hoping and praying that his works.  My largest fear is that something doesn't go right or that everything does, but he relapses down the road.  It's one of those things that you start thinking about and then you sort of mentally scold yourself for fear that thinking it might generate it's actual happening. In any case, hoping and praying.

I do fully look forward to the possibility of us getting our lives back and continuing on.  They made it rather clear to us though that it takes awhile and coming home from the hospital won't be an easy/fast transition back into life previously.  I'll continue to hope it is though.

Other perils:  Our first oncologist had projected Tom to be done with treatment and back to work for February, so all of our original paperwork states this and thus, state disability sent us a letter saying that means we won't be getting paid.  Of course it's an easy fix, our current doctor just needs to fill out the form stating he is still "disabled" and unable to work, but I have a feeling they may take awhile to pay us... so thankfully we've already done our taxes because we may have no income this month.  Fantastic.

In any case, that runs out in August anyway, at which point we must hope Tom is okay to at least stay home alone because I'll have to go out and win the bread. Yippee!  Well, anyhow. Super excited that we're on the right track and in the near future my husband's life will be restored!!! :) Let's go 2013!!!